On the internet, you’ll find a lot of posts about safely cooking with your propane-fueled stove, how to estimate how much propane remains, how to light the burners, and “everything” you wanted to know, EXCEPT…
…what to do when you’re about to cook and you run out of propane or lighter fluid!
I’ve lived in our 15ft travel trailer for a month and have experienced both. While I may not be an expert on full-time camper living, I am quite adept at handling chaos. I am a dark fantasy writer, after all. Gods and monsters are my thing. 😉
Rules to Save Your Breakfast, Second Breakfast, Elevenses, Lunch, Afternoon Tea, and Dinner
1. Always have extra propane tanks, filled and ready to switch out the emptied.
2. Always have extra lighter or matches on hand to replace dead lighter.
3. Always have alternative cooking methods.
–We have the convection oven microwave and an Instant Pot. Even the electric tea kettle would do to heat water for oatmeal or any other just-add-water instant foods.
4. Always stock your pantry or refrigerator with foods that don’t require cooking.
–Salads, sandwiches, cheese, hard-boiled eggs, fruits, vegetables and dip, pita bread and hummus, nut butters, seeds and nuts
Our long-reach lighter wouldn’t spark this morning, and I’d already broken the eggs and whisked them with cream and feta cheese. While we had an extra lighter, I didn’t know where Shane stored it. Perhaps that should be a rule: know where you keep your supplies. 🙂 So, I’d texted Shane but was too hungry to wait for his reply. Patience is not always my virtue. So instead of making scrambled eggs, I poured the egg mixture into a ramekin and baked a crustless quiche. 🙂
I had to eat my cinnamon-sprinkled toast and drink my green jasmine tea before eating my eggs, but in the end it worked out for me
The final rule should be: Be flexible and creative when cooking chaos happens. Because it will happen, no matter much you know about how a propane stove works or how to avoid carbon monoxide poisoning.
I have Ehlers Danlos Syndrome (EDS) hypermobility type and hike.
It sounds like the start of a support group, and maybe it is. For those afflicted with EDS, frequent joint dislocations/subluxations, chronic pain, and fatigue but who want to stay active on the trails like I do, then support is exactly what we need. I’m talking stability belts, braces, tapes, and hiking poles in this case. 🙂 However, I’m also here for you if you seek emotional support as well. ❤ I completely understand loving an activity and struggling to continue with it, or having to give it up entirely—yoga and dancing, for me. 😥 Kayaking and cycling are questionable at the moment. However, to keep me hiking, I’ve spent the last year working with the best physical therapist I’ve ever had (and I’ve had many, for different joints, over the last 25 years). Dave Miers is the only board certified orthopedic and fellow trained in manual physical therapy in Cincinnati, Ohio, and I owe him my life (on the trails). https://www.mierspt.com/
About twenty-plus years ago, I fell in love with mountain hiking. I did my first summit hike in the Uintas Mountains and have since blazed every day-hike trail possible in the Wasatch Mountains in Utah. I’ve hiked stunning canyonlands in Utah as well: Bryce Canyon, Snow Canyon, Zion National Park. I’ve booted many miles in reserves, state parks, and national parks in many other states too: Alaska, Hawaii, Colorado, California, Montana, Nevada, Virginia, West Virginia, North and South Carolina, Florida, Georgia, Tennessee, Kentucky, Ohio, New York, and lately Pennsylvania. I’ve even put in miles in Grand Cayman, France, Italy, and England. If I had my way, I’d hike the entire planet.
But, a little over a year ago, I couldn’t even walk a quarter of a mile.
Why? This requires a little background information…
I have problems with most of my joints; it’s probably easier if I list the unaffected ones: ankles and toes. Although, my left foot is perpetually swollen because of tissue fragility and leaking cells. Anyway, this post is about the powerhouse of walking: the pelvis and sacroiliac joint. You thought I would say legs, didn’t you? 😛 Guess what they’re connected to? 😉
So…I’ve had “hip” pain since I was 32 years old (I’ll turn 51 this April 2019), and seen various orthopedics and physical therapists to help me to no avail. I’d even had surgery for FAI impingement in 2014 and steroid injections. As it turns out, it’s not quite my hip joint–it’s my entire pelvis, which one physical therapist who specializes with EDS patients called “wibbly wobbly.” She actually “fired” me from her care because my pelvis was too hypermobile! Yes, my pelvis is very hypermobile, the most hypermobile of any of Dave’s EDSers. The root of my problem is “loosey-goosey” (doctor’s phrase, not mine. I’d say “lax”) ligaments and sacroiliac (SI) joint dysfunction.
The strongest ligament in the body on me is too stretched, too loose, and cannot hold the joints in place. Quite often I suffer subluxations, or partial dislocations, of my sacrum and/or my ilium. If they go, then the lumbar spine tends to follow. Basically I’m Humpty Dumpty, and my physical therapist has to put me back together again, and again, and again. After adjustments, he guides me through different strengthening and stabilizing exercises, and amps the challenge as I master some. He’s taught me how to properly walk, sit, stand, enter/exit a vehicle, and climb stairs–yeah I did all those incorrectly because chronic pain has a way of rewiring your mechanics and disconnecting the brain. A lot of the therapy is retraining your brain with the body, and I have gotten stronger and gained more of my function and ability back, at least when it concerns walking/hiking.
Although my sacrum pops constantly out of place, typically the left side shifting downward and twisting inward, my ilium stays more often than not in its neutral, normal position. That said, two months ago I partially dislocated my ilium while rolling over in bed and reaching down to turn off my alarm. Yeah, I hurt myself sleeping. If you have EDS, you probably have as well. I did learn self-correcting techniques for my sacrum and my ilium, and I can say it’s easier to reset your ilium than your sacrum. I’ve only ever been successful once. At least intentionally, I’ve “accidentally” self-corrected randomly simply by being and moving around with enough force to correct it. Or coughing. I seemed to have popped my sacrum today with a cough–though, in or out, only an x-ray or my physical therapist would know.
If you have SI joint dysfunction, you might be interested in these videos for self-correcting the sacrum as suggested by Dave Miers:
Now, for the gist of the matter: Hiking Tips for the Hypermobile Hiker!
1. Consult your doctor and/or physical therapist about the type and intensity of activity that suits your ability. As I’ve mentioned, I’ve had to quit certain activities and for what remains I’ve had to accept limitations and modifications. I can hike within reason but can no longer do rock scrambles, or very strenuous or very long hikes. I tend to hike the easy-to-moderate trails now. Even though my physical condition and abilities have declined, I am better off than many with EDS because I maintained a very active lifestyle and kept as fit as possible, considering. I might be the most hypermobile EDSer under Dave Mier’s care, but I’m not in the worst shape. I’m a proponent of “move it or lose it” despite doctor’s advise to stop, despite the fact one told me I was “very brave” to do what I do. As I tell my mom who worries, I’m going to hurt myself “being”; I might as well hurt myself having fun. 🙂 Your opinion may differ. 🙂 But attitude is part of the battle in managing EDS. Pain is much harder to cope with if you’re also depressed. ❤ Hiking is my natural anti-depressant.
Not only consult the experts about what to do, but how you should do it. Dave designed my program centered on my goal to hike. His individualized care has made a world of difference. I can’t give you medical advice on what exercises you should do and leave those tips to your care provider. I highly recommend finding a manual physical therapist fellow–trust me, I’ve been seeing physical therapists since I was 25 years old, and I’ve failed physical therapy every time until I met Dave Miers.
2. Buy the best pair of sturdy boots you can afford. You’ll need the best footing possible on uneven ground, slippery rocks, snow, muck, when you ascend and descend, if you can rock scramble. Sole tread and grip matter too. If you have wobbly ankles like I do, then you’ll need good ankle support. You’ll need good arch support. Ultimately, the boots will have to be comfortable. REI has a rock prop for you to test boots. Or hiking shoes, if you decide you don’t need ankle support.
3. Get some trekking poles with a comfortable grip. I couldn’t believe the difference hiking with and without poles, and wished I’d been using them the entire time. Using the poles takes the pressure off my knees. Usually after hiking my knees would swell and hurt. Now I can hike without knee pain! Or a knee brace or tape–neither of those helped me because my knee caps move way too much. As an aside, one time during physical therapy, I mentioned my knee kept moving while I did the exercise. Dave tried to hold it in place while I performed the motion. My knee still moved! He gave up, knowing it was a lost battle. Wiggly knee wins every time. So, who wants to buy my expensive knee brace that can’t hold my knee? Only used once. 🙂
4. Wear your joint stabilizing belt, braces, or tape. I gave up the knee brace, but for my SI joint dysfunction, I wear a sacroiliac belt. Although the belt doesn’t hold my wigglier-than-my-knee sacrum in place, it definitely keeps my ilium locked in a normal position when I hike (not so much when I kayak). The one time I forgot to wear my belt on a short forest hike I ended up with a twisted torqued pelvis. Furthermore, the SI belt may not protect you if you fall.
Taping or wearing shoulder braces will also help your SI joint–subluxation of the shoulders will cause subluxation of the cervical spine, which will cause subluxation of the SI joints. Shoulder bones connected to the hip bone. 😛 I can’t tape myself and haven’t yet decided on which brace to buy (too many options). If you have a favorite, please let me know in the comments. 🙂 I still think a biomedical engineer needs to create synthetic spider webbing for us EDSers. 🙂
5. Get professionally fitted for a backpack. You’ll regret hefting the weight if you carry the wrong backpack for your body. The unbalanced weight will strain your neck, shoulders, back, hips, and knees, and you’ll ache at the very least. Matter-of-fact, my physical therapist advised wearing a backpack instead of carrying or pulling luggage. I wear a small backpack instead of carrying a purse to balance the weight, and of course I have an XS 40L backpack for my back-country trips, but I only carry 20-25 pounds (ultralight backpacking!). https://www.ems.com/the-north-face-womens-terra-40-backpack/1304688.html
6. Know your limitations. Hike only as far or as long or at the difficulty level your body can handle. Don’t hike twelve miles as soon as you get the green light from your physical therapist and then complain about hurting. Not saying this happened to me, but it happened to me. 🙂 I tend to overdo it, but on long backpacking weekends, I now only hike to the point I feel the first sting of pain and stop. I no longer push myself through the pain, which is what I’ve done all my life until the last year. Understand your thresholds, whether it’s distance, exertion, temperature, fatigue, pain. These may help you avoid injury or the inflammatory flares.
7. Prepare to manage the inflammatory flares. Even on long backpacking trips, I bring what’s necessary to decrease inflammation. Inflammation is a state of being when you have EDS, and working joints and muscles will exacerbate inflammation. I rely upon a variety of measures: (1) grape seed extract and turmeric extract; (2) portable TENS; (3) Max-Freeze (I prefer it over Biofreeze and Icy Hot); (4) my icy gel pack or ice; and (5) rest. ACE bandages and shoulder slings come in handy too. I also take Indomethacin, a prescription non-steroidal anti-inflammatory, daily because I have hemicrania continua, a rare chronic headache condition. I’m not sure if Indomethacin helps my joint pain because I always have joint pain, but maybe the pain would be worse if I didn’t.
What tried-and-true at-home self-care methods do you use?? 🙂
8. Adopt an anti-inflammatory diet. Certain foods produce a pro- and anti-inflammatory response in your body. You’ll find lots of information on the internet about an anti-inflammatory diet, which foods to include, which to exclude.
As for me, I opted for a vegetarian diet 18 years ago, but, because of high insulin and low sugar health problems, I needed to further restrict myself. I only consume 50-60 grams of carbohydrates a day and eliminated gluten. As a result, I feel better, lost 16 pounds of water weight caused by high insulin, and experience the benefit of pain reduction, especially for my headaches. I discovered gluten triggers the worst of my head pain. I will admit my diet presents a challenge at times and demands careful planning to meet my nutritional and appetite needs. The benefits far-outweigh the cost of effort though.
In my camper cooking blog (https://wordpress.com/block-editor/post/thewanderfullife.home.blog/158), I mention I’m a fan of organic foods. I’m also a fan of non-GMO foods (because of the lack of transparency–what’s in my food? An additive that’s pro-inflammatory? A chemical that artificially raises insulin?) and sustainably produced foods, such as eggs and dairy from pasture-raised animals, or palm oil, which if not sustainably produced contributes to deforestation and the endangerment of tigers, elephants, rhinos, and orangutans. 😦
If you watch Forks Over Knives (Netflix), you’ll learn a lot about the food industry and human, animal, and environmental welfare. Adopting a whole food, plant-based diet could reduce disease risk and boost your health and body’s maintenance and function.
An EDS expert states the whole food diet, as well a paleo, raw, Mediterranean, and vegetarian/vegan follow the approach she recommends for those with EDS. Many of us have digestive issues, such as gastroparesis, or food sensitivites because of mast cell activation syndrome (MCAS). We need the most appropriate fuel for our bodies. I’ve provided the link to that information: https://issuu.com/markmartino8/docs/eds_nutrition_and_supplements_heidi
9. Repair and build muscles with a protein bar or drink. While whole foods contain the amino acids your body needs to repair or build muscle, I feel my muscles need the extra boost. Overstretched, weakened ligaments and tendons cannot hold the joints as intended, and cause joint instability. The muscles, thereby, double duty as muscles and connective tissue, holding the joints and moving the joints. Fatigue and spasms ensue.
As you age, you tend to lose muscle, but as someone with EDS, you need more muscle. It feels like an uphill battle, and sometimes I think all I can do is maintain my muscle rather than increase muscle mass. I tell my children–my daughter confirmed with EDS, my son suspected–to get strong and then get stronger. That’s the legacy I leave for the genetic lottery we’ve won.
My favorite brands of protein powder are Garden of Life and Sun Warrior. They both have BCAA’s the building blocks for muscles. Since I have a low-carb diet and need to avoid maltodextrin/dextrin (raises insulin), I have two choices for bars: Quest Bars and Power Crunch’s Snapsticks. Also, I ❤ the Koia convenient ready-made protein drinks. Other options to increase protein and omega-3 fatty acids are flaxseeds, chia seeds, and walnuts. The problem with those is the volume you need to eat. 🙂
10. Use foam rollers to stretch and calm your muscle tightness. My most important rule: NO STRETCHING! Stretching only further weakens already over-stretched ligaments, and you’re more likely to hyperextend a hyperflexible and hypermobile joint. We all know what that means: PAIN and DAMAGE to the joint.
The first time I used a foam roller on my quads I wanted to cry. Yet, over time it does work. I have a large roller and small roller. You’ll find a myriad of roller types and size. For some spots, you can even use a tennis or rubber ball.
If you can afford the luxury, pay for a medical massage. They hurt more than the roller, but…:)
11. Enjoy life and this world. We’re not long in it, and you might as well go into the grave with a defective, broken well-used body than a hardly used one. You’re going to hurt yourself no matter what you do.
You might as well enjoy the sights and sounds, even if the sounds are your joints popping.
Shane and I embarked on the wanderful life without researching whether we had the personality traits to live full-time in a camper. For a very long time, he dreamed of a nomadic life, where he could work and travel at the same time. He knew he could live in a tiny space and could adapt to any situation. His life experiences taught him such. But, when he asked me to join him, he had to dangle the most delicious carrot (“you can write your novel and hike”–ummm, yes please!) for me to consider this as a lifestyle. Living full-time in a camper was the polar opposite of my desire to settle down as a homesteader. I wanted to buy land, build my off-grid sustainable house, plant a garden, raise chickens and bees, and maybe have kids, the kind that bleat and devour grass, hats, and anything they can chew. 🙂 OMG I ❤ this baby goat: https://www.youtube.com/watch?v=AWvefaN8USk
Why did I agree then? The carrot and the person holding the stick.
Home is where the heart is, and Shane has my heart. ❤ Not to mention, my heart sings in nature, while hiking and exploring new places, while writing. He simply had found a way for our dreams to collide.
On Halloween 2020, I plan on getting Mauied with him (aka married in Maui). I’ll definitely find out if we’re truly meant for each other, as my friend Missy pointed out. My friend Alex posted this funny meme on my Facebook page:
Even people who don’t live full-time in a camper recognized the challenge. But, as individuals can we overcome the challenges? What about as a couple?
backpack, kayak, and snorkel. He skydives, while I hang-glide.)
fact we’ve both not only
lived through potentially
but thrived regardless attests
to our adaptability. We have good coping strategies, albeit I’ve
needed to enlist new ones when I lost my tried and true ones.)
both very happy on our own, doing our own thing)
first blog illustrated this. Now, we deal with getting in each
other’s way with humor. Case in point: he told me to get my sh*t
out his way. I told him his way was in my sh*t. We had a good
so dedicated I started a blog to chronicle this wanderful life!)
willing to go anywhere)
is why he chose to do this. We’ll save money! We certainly can’t
buy anything because nothing else will fit. LOL In the end, our
goal is to save
enough money to buy a
larger plot of
land or more goats.).
Those personality traits will bring two people together on the full-time camper/RV path, but they may not keep them together. Living in a small, cramped space alone has its frustrations; living in a small cramped space with another person always invading your space will double frustrations and might cause division in ways other than “the cabinets on this side are mine, the other yours.”
all the above, we would add three other significant characteristics
you cannot do without:
who work as a team will accomplish more, and their camper will run
like a much larger efficient house. Settle
into a routine; assign specific responsibilities between the two of
you (or to everyone in the family); tackle problems and brainstorm
solutions together; do what needs to be done for the other person,
for the team.
too serious to take seriously. Couples
who play together stay together, and
we fully intend on goofing off.
Pretty sure our camper
neighbors think we’re nutball. LOL We
expect things to go wrong; we expect to butt heads (like goats) and
step on toes (probably more
literally than figuratively).
However, we expect the fun
times to outweigh the un-fun times. We love this wanderful life thus
far and feel eager about where we will wander into wonder.
3. Most importantly…When I asked Shane what traits you need as a couple, all he simply said was “Love.”